~As for me and my house we will serve the Lord ~ Joshua 24:15

Jul 26, 2019

Update on Blaze...


Since being at at CHOA we have
 had a different neurologist over Blaze.
He has came around every day to update me.
He has been really super nice and good about
keeping me in the loop.
However, he did tell me that he's not so sure that
Blaze is going to be a good candidate
for surgery because since we've
been here, his seizure pattern has looked different. 
In all previous testing it has pointed at
the temporal lobe/ hippocampus area as our problem
but now they are saying they are seeing discharges 
from other areas as well. 
I'm a little concerned but not losing hope
just yet as I haven't been told that
 by our neurologist or epileptologist.


Jul 25, 2019

Just hanging out...


Blaze is making the best of it.
He discovered that he really likes nutella!
There is very little that he eats by mouth so
I couldn't believe he was willing to try it!


He had a visitor today from 
the canine assistants team!
He was so excited!
He gets so bored here so he really enjoys visitors
especially 4 legged ones.

Jul 24, 2019

Jennifer is the bomb...


If you know Blaze then you know that he loves super heroes! Our first day here, we found this cute shirt in the gift shop. However, they only had one and it was a size smaller than we needed, so I took the name off of the shirt and contacted the company (chatterbomb). I wrote and asked them if they had anymore of these shirts in Blaze's size because I wanted to purchase one. Jennifer ( The Owner) wrote me back and said that she would check. Today, she hand delivered him two shirts and a bag of goodies! How sweet was that??? The cool thing about her shirts is that they have a hidden message on the inside. When you flip the super hero shirt inside out it says, "You are my super hero". It fit him perfectly! It was such a blessing!






Jul 23, 2019

We had a great trip...

We had such a great trip to Kure Beach. It's such a beautiful place and we loved how everything was in walking distance and not so commercialized. We've been trying to plan a beach trip for several years with my friend BFF Monica and her kiddos and we finally made it happen! We were also excited that my daughter Katie and her family, as well as Blaze's friend Cindy and her hubby Tom were able to join us! After the stress of the last few months, it was nice to just get away for us all. It's for sure a place that I would love to visit again!

Jul 22, 2019

Update on Blaze...


We came in Sunday from vacation and emptied out all of our suitcases and then repacked them. We had to be at CHOA at 7 AM this morning for Blaze's SPECT and 5 day EEG. All of the kids were sorted out to different friends and family members.  I think this is the last admission that they needed before they submit Blaze's study to Emory.  Wish us luck. It's going to be a long week, especially for Blaze, as he will be in this bed for the next week. However, he's such an amazing kid and never complains. He never gives me problems about staying in the bed. He really is such a sweet kid! 

Beach Trip 2019...















Jul 21, 2019

My beautiful babies...


To think, God blessed me to be their MOM!
What a precious gift from above.
It's such a honor.
I love these babies with all of my heart!












Jul 20, 2019

Cindy Runs 4 Blaze...


Blaze was matched five years ago with
a buddy from the IRun4 Michael group!
His buddy Cindy and her hubby Tom
live in NC. They drove over to spend
the day at the beach with us!
 Blaze was so excited!
We had so much fun!!!!!

Even more pics...


Even more pics from today!
Kure Beach NC






















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