~As for me and my house we will serve the Lord ~ Joshua 24:15

Showing posts with label Neurofibromatosis. Show all posts
Showing posts with label Neurofibromatosis. Show all posts

Jun 1, 2020

Congratulations Layla...


The "Yes I Can!"
award was presented to...
Ashton Layla



Every year our county awards the "Yes I Can!" award to a handful of children within our county. Our sweet Layla was one of those kids! She was nominated by her teacher Mrs. Witteman.  The Yes I Can! award celebrates the achievements of children and youth with exceptionalities, encouraging these individuals to seek their highest potential, and increasing public awareness of the abilities, aspirations, and personal qualities of those with disabilities. Mrs. Witteman said that the reason she chose Layla for this award was because, "She is my hero". How sweet is that?

Layla is doing absolutely amazing! She just completed her last year of prek and will be moving on to kindergarten in the fall. She will move into an inclusion class this coming year. Layla is a child like no other. She has overcome so much in her life and continues to amaze us every single day.

 She went from a child that they thought might not survive due to severe child abuse and neglect, to a little girl so full of life. It's been a joy watching this sweet baby bloom right before my eyes. She still does therapy a couple of days a week at school and in private but I don't think she is going to need it for that much longer because she has come so far in her road to recovery.

She was diagnosed last year with NF1 and underwent surgery to remove a tumor but she has had no further issues with that and we pray that she never will.

She really is doing AMAZING! This kid is a strong little girl and she is not going to let anything stand in her way of reaching her fullest potential.

Miss Layla, mama is so very proud of you! You are such a blessing to me. I love you sweet girl with all of my heart forever and always and no matter what.

Unfortunately, they aren't able to hold the Yes I Can! honor ceremony due to the Covid-19 virus quarantine but she was still excited just knowing that she was chosen for such a wonderful award.





Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

Sep 12, 2018

Update on our baby girl...


Yesterday, I took baby girl back for a followup from her surgery. We got the results from the pathology report and we did not get good news. The tumor they removed tested positive as (NF) neurofibromatosis. 
To learn more about this condition you can go to the Children's Tumor Foundation.  
They are referring us to Emory to see a doctor who specializes in this condition. Please keep our sweet baby in your prayers. 

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