~As for me and my house we will serve the Lord ~ Joshua 24:15

Apr 30, 2019

About Blaze...

I haven't shared that much info on here about what is going on with Blaze. Over the last few months, Blaze's seizures have increased. He is having seizures almost every day now. He has been to the hospital/ required rescue meds 7 times in the last 6 weeks . We've adjusted meds, maxed out meds, changed meds, etc and the seizures just aren't stopping. He has failed multiple meds and is currently on 4 seizure meds. Somedays he has none and other days as many as 1-30 a day. His doctor sent him for a CT scan and also a MRI. The results came back and showed significant changes to Blaze's brain including new lesions not seen in the previous MRI, that we had done last year. Our neuro decided it was time for us to start discussing other options for Blaze. She gave us a referral to an epileptologist at CHOA. Blaze has been diagnosed with multiple types of seizures but almost all of these last tests seem to show that most of the seizures start in the left side of his brain. The left temporal area and hippocampus area and spread from there. After this last round of testing, he was DXd with mesial temporal lobe epilepsy (intractable) and hippocampal sclerosis. The epileptologist basically said that Blaze will not get better without surgery because it's a progressive condition. He is going to have to have surgery. We started phase one of the testing a few weeks ago and next week he will be admitted to start phase two. It takes a lot of testing and studies before they can decide if surgery is a possibility. So far, the doctors seem to think that Blaze he will be a good candidate. It may not stop all of his seizures but it might. Without surgery, she gives Blaze a less than 10% chance that he will get better on meds alone. Due to the new lesions, they just expect that the seizures will continue and get more frequent and possibly cause even more damage to the brain. The question is what type surgery? Can it be a more simpler laser type surgery or will they have to open up the whole side of his head? Will they remove the hippocampus or the left temporal area? How will he be affected by the surgery and removal?...  We don't know. That's why he is undergoing all of this testing. We need to see exactly what those areas of his brain control. Then we have to decide if it's safe or to risky.  It's so much to take in and almost overwhelming. I am scared... very scared. Blaze needs lots of prayers. We all do including the doctors who are making these big decisions.  To learn more click here. 

Apr 28, 2019

Sweet Ada Grace

Apr 27, 2019

Bailey and Blazer...


Miss Bailey came today to cheer Blazer on!


Team Impact plays the firefighters...


New day, new game, new color,  new name!

We changed our team name this year!
We decided to be  team "Impact"
which we all agreed is the perfect name for our team.
All of the children on our team
have unique needs and each one is extra special
with a hero story of their own!
These kids have made a huge impact
on so many. 


Today team Impact played our local firefighters!
They had so much fun!
It was even more special
to Blaze because my son-in-law Corey
who is a firefighter
came to play too!

Blaze absolutely adores Corey!
He is for sure one of his favorite people.


Several of our kids left before we could 
get a whole team picture with the firefighters.






Such a fun and very sweet day! 



Apr 26, 2019

The perfect day for a picnic...


Today was the perfect day for a pizza picnic in
the park with friends!
Our first picnic this year!


Apr 24, 2019

Update on Baby Crawford #2...


Ashley went back for her OB apt this week. 
Things look really good with the baby.
The pregnancy is still a high risk and
Ashley has to remain on a no lift/ take it easy
plan. They are not sure exactly yet
if what they see is a blood clot or cyst so
they are sending her to a high risk
OB. However, nothing had changed 
since her last apt, so that was good!
Please keep her in your prayers. 

The BIG BROTHER


My lunch date...


I enjoyed lunch time with this sweet boy today! This kid has me wrapped around his little finger and he knows it! I love my little Z! #1blessedmom


Apr 23, 2019

Oh the love...


She loves her brother! I love how she tries to mother him and always tries to take care of him. I pray that they will always be this close. Blaze had to be carried by ambulance from the school to the ER because he had multiple seizures this morning, but he is doing so much better now and hopefully, we will get to go home soon.  I love my babies!

Goodbyes are so hard...



This just really tugged at my heart. Blaze's OT left us and is moving to Colorada. Needless to say, our hearts are broken. We sure are going to miss Ms. Katlin. Before she left,  her and Blaze did this little craft together. We will keep it forever! She has for sure been a blessing to Blaze. When you spend years with the same therapist they become like family and saying goodbye is so hard. 



Apr 21, 2019

Happy Easter!...





Easter 2019 (picture over load)...


Making memories with my babies...


Brookelyn


Zachary




Aniston




Layla



Love my daddy!




Justin



Blaze



Ada Grace






Ruston



















Someone has had to much chocolate and Mt.Dew...lol
Anna, Jacob, and Ashley (3 of my big babies)
Katie wasn't able to make to because
 they are in NC for Dylan's training,
and Samantha had another family dinner.
I sure wished they all could have been here. 
I miss my kids the most on holidays. 










I'm a blessed lady!
God sure has been good to me!

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