Our meeting...

Last week, I got a call from the BOE asking me if I was available this week to meet with their OT. When we met the other day we didn't have an OT present in the room. We scheduled it for today. I met with her this morning and I really liked her a lot. I also really liked that it was just her, Blaze, and me in the room. The last meeting consisted of about 12 people in the room and I felt almost overwhelmed by all of the questions and medical discussions and poor Blaze was in overload mode. Today was a much calmer meeting and Blaze did very well. She was very interested in Blaze. She said that he was only the third cCMV child that she had ever met. She knew a lot about cCMV and I appreciated that, so many don't. I feel it's important for the ones working with him to know about CMV, because so many of Blaze's issues are from cCMV.  She took up a lot of time with him and asked me a ton of questions about him. She listened to all my concerns and really seemed to care. The last meeting I had with the BOE left me feeling like they were only telling me what I wanted to hear but many times I felt like they were not being completely honest with me. This meeting was so different. She was an older lady and very good at what she does. After almost three years/ 4 days a week therapy, you learn how to pick out a good therapist from all the others. She was good. She did all kinds of testing and pointed out a lot of things that I didn't even know about Blaze and explained in great detail .  She also picked up really quickly that Blaze was autistic. Before we even got to that, she asked if I knew anything about autism.  I said, " Yes Blaze was diagnosed with classic autism/autistic disorder through the Marcus Center. She said that is wonderful because I was going to recommend you have him tested for autism and she said Marcus was a really good place (I agreed).  We discussed my options for schooling ( special needs program though the public school, Georgia school for the deaf, Atlanta school for the deaf, etc) and then I asked her opinion of what she thought would be best for my son. She said, If you could ask me outside of this building I would have give you my honest opinion, but I can't tell you what I think, because I work for the school system.  However from what we talked about I think she thinks that they will not be able to meet all of Blaze's needs. I also think that she does not like that he may go to the school by my house (not sure why) but she asked had I visited the special needs classroom there and I said ,"no" and she said that I really need to do that, before I send him there, because I might not want him there. It left me wondering what she knew that they weren't telling me. I walked away questioning myself once again if sending him to our local special needs PreK is what is really best for my son.
 
 
Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6