He will go back to CHOA in a few days to have the device turned on. Then he will go back every two weeks for three months to have it adjusted. It's been a long journey to get here but thankfully we are here and we pray that this will help Blaze and give him a better quality of life.
Blaze had his first seizure at 2 months old.
We tried 11 medications and failed.
He spent many weeks in the hospital to let the doctors study him and his case.
He has multiple types of seizures and a diagnosed with Lennox Gastaut Syndrome, CP, malformation of the cortical dev of the brain, hippocampal sclerosis, polymicrogyria, and CMV.
We started with choa neurology and then moved to choa epileptology.
He was not a candidate for brain surgery.
But, he did get approved for a VNS and had it implanted on July 16th.
