Epilepsy Awareness Month...

 Blaze has a combination of types so his dx is 

 generalized epilepsy because it effects 

 many areas of his brain.

Because Blaze doesn't talk we don't know

truly all he experiences but we do know certain behaviors

he has during each stage of a seizure

 such as he smacks his lips,

vigorously rubs his nose, Has minimum shaking, 

gags, and almost always vomits. 

Afterwards, he goes into a deep sleep

 for minutes to several hours during 

that time he has to be closely monitored

because he can forget to breathe.

When he wakes up, he almost

 always has a migraine.

Flashing lights do no tigger Blaze.

However, we noticed more seizures 

during holidays (excitement triggered), when getting sick,

when he is very tired ( after busy days), as well as no 

known trigger at all. 

We went through a period where Blaze was 

going to the hospital multiple times a week because of

seizures and during high seizure times he would lose

skills he previously could do like writing his name, 

counting, knowing his colors, etc.

Blaze has intractable epilepsy.

He has failed 7 meds so far 

but right now he is on a 

cocktail of meds and doing VERY well.

Blaze has very little to almost no movement

during seizures. It's very scary because he can

easily go into a life threatening seizure and make

little to no sound at all. He has been hospitalized 

several times for status epilepticus. It's very very scary.

As I mentioned Blaze is doing very very very well!

He still has occasional seizures but 

he hasn't gone status in over 2 years 

so he has made huge improvement.

I'm just amazed at how well he is doing.