We caught the Easter Bunny!...

Hippity Hoppity Easter's on it's way!

He is up walking today...

Blaze is up and walking today. They moved him to the regular floor and he is so much happier. He was able to rest much better last night. Hopefully in the next day or so we will be headed home. Thank you for all the thoughts and prayers that have gone up for Blaze! We appreciate it more than you even know. 

Please keep Blaze in your prayers...

I took Blaze in to see our new neurologist today to have a EEG done. They asked that I try to keep him up late and to wake him up early so that he could sleep for part of the test. Well that's what we did. During the test Blaze went right to sleep and started having seizures. We ended up being transported to CHOA and Blaze is in the ICU. Sleep deprivation and a common cold combination created a storm. Blaze went into status and needed help with breathing. 

The test reveled that Blaze's epilepsy starts in his left temporal lobe and spreads from there. He is now on 3 seizure meds. She said he is having almost constant spikes mostly at night...which scares me so bad. For now, he is back sleeping in our room. We are doing a trial run of a seizure device but I'm not to impressed so far. It has given lots of false alarms and failed to alarm a couple of times.

Please just keep our baby in your prayers. 

Epilepsy Awareness...

March 26 is considered purple day. A day set aside to educate the world about epilepsy. As you may know our son Blaze was diagnosed with epilepsy as an infant. Seizures have become a part of our daily life...unfortunately. It is very life controlling and something we have to be aware and prepared for 24/7. So today, is a good day to educate our family and friends on this very scary thing called epilepsy. Education is the key. Education can save a life.

Our son was diagnosed as an infant with simple partial seizures.

As he grew into the toddler years, his seizures changed 

and he was diagnosed with complex partial seizures.

At the age of 6,

his seizures became more frequent and severe.

He also developed more types of seizures.

He is diagnosed with

Intractable Epilepsy.

He has had a combination of

 Complex and Simple Partials,

Generalized seizures with status epilepticus

as well as,

 Tonic Clonic, Drop,

 and Absence Seizures.

He has been hospitalized numerous times

over the last year because of epilepsy.

It truly does control a person life

He is now on 3 seizure medications

and wears a monitor. 

Click on pictures to enlarge

Types of Seizures

Seizure First Aid

Click picture to enlarge.

The youngest bunny in our patch...

It's little Hayden's 1st Easter!

Sweet baby cousins...

I think they like each other!

Sweet baby cousins

Ruston & Hayden.

They are 2 and 4 months now!

I hope they grow up

to be the best of friends!

Easter's on it's way....

Baby Ruston's first Easter!