Finally sleeping...

My sleepy baby boy.

He is FINALLY asleep.

He has had a really tough day.

They came in and fixed his head dressing,

because it was so far down that

he could barely open his eyes,

and he kept picking at it.

Once they fixed that, I got to hold

and rock him, and he went out.

He was exhausted (mommy is too).

The purpose of these tests

are to look for any seizure activity 

over a 48 hour period

and hopefully learn

what type seizures he has.

The seizures he seems to be having

are not the same as the first

ones he had and was hospitalized for.

Actually, these don't even

 look like seizures to me,

but I'm not a doctor.

His neuro sent us for the 2 hour

test,but it didn't show anything

other than some slowing

 of the brain waves

 (most likely caused by CMV).

So she felt we needed a longer test.

I video taped him and shared

it with our Pediatrician last week

and she said it was for sure seizures.

His OT has been telling me

for some time that she felt he was

having more seizure like activity.

So that's why we are here.

Hopefully they can adjust his kepra

and stop the activity.

 Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6