~As for me and my house,we will serve the Lord~Joshua 24:15



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Nov 27, 2014

My little turkey...



Thanksgiving signs in ASL





 Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

PSALMS 100:4...


 Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

Nov 26, 2014

My little gifts from above...


Adalyn, Kaylan, and Waylan


 Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

Christian Signs in ASL...


 Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

A wristwatch for seizures...



With #EpilepsyAwareness month coming to a close we are excited to announce that a wearable, seizure-detecting wristwatch (ankle band), tested in our Epilepsy Center, is moving towards a commercial launch! Called Embrace, it was developed at the MIT Media Lab to act as a "smoke alarm" for seizures and hopefully prevent unexpected death from epilepsy. Learn more about the device and how it could aid in future medication development: http://on.bchil.org/15nvC9Z


Another Good Reminder.
Seizure First Aid
~~~~~~~~~~~~~~~

I keep a reminder list 
similar to this one
next to Blaze's
 Diastat pen.
*Always Be Ready*

 
 Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

Nov 25, 2014

It's almost that time...


It's almost Thanksgiving !

We always kick off our Thanksgiving celebrations the weekend before Thanksgiving. We started last Saturday with the Hubby's side of the family...his mom's side. It was good seeing everyone and the food was wonderful. Sometimes I feel my MIL gets the short end of the stick and is often the forgotten one. This year we made sure we arrived early and stayed extra long with her. We also took lots of pictures for her to have. I'm blessed to have a MIL who cares so much about us and our kids. She also supports and encourages us no matter what...which means so much to Brent & I. She always reminds me that her church is praying for us and especially Blaze because she always requests it. How sweet is that? Are we blessed or what? 

On Thanksgiving, we will be going to my mom's. I always look forward to any time I get with her and my dad. My nanny always made Thanksgiving extra special when she was living and I'm thankful that my mom is still trying to carry on our family traditions. I know the holidays have been very difficult for her over these last few years, but I'm so thankful that she is doing better this year. My mom is one of the strongest women I know. I'm so thankful that she is not only my mom, but also my friend. 

I'm looking forward to having  my kids together. Maybe we can get a group/family picture. It's hard sometimes to get the guys off the couch and in front of the camera, but I'm going to try.  The guys always take over the den to watch the TV, the girls always gather in the dining room/living room to go through the sales papers to plan our yearly mother/daughter shopping trip, while the kids play catch up with their cousins. I just pray my kids are always this close and that my grandkids will get to grow up together and make lots of sweet memories. 

I'm excited because this year will be Aniston, Waylan, and Tiny's very first Thanksgiving. We sure have been blessed this year with these 3 precious babies. 

Z will also get to spend Thanksgiving with us, which means so much, and our Blaze is doing so well this year, and we are so thankful for that too. My heart is just full. 

I'm sure Nanny, Robby, and Bryan will be with us in spirit. They will be the missing pieces. The sweet memories they have left us with are now some of our most precious treasures. I will never forget them...ever.

I think it's going to be a wonderful Thanksgiving. If you can't tell,
I am just over flowing. I have so much to be thankful for this year.
God has been way to good to us.
Thank you Lord for your blessings on us.


Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

Nov 23, 2014

My daughter's Family...


I got this pic off of Corey's facebook.
This is Corey & Anna's family :)
It's their first family picture together
that includes Justin (JK).
His new name will be
"Justin Cade".


Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

Picture Drop...

A few pics from the last few days..

Aunt Sandy's pride and Joy
Bailey
She spent last weekend with us.

Our Z is still with us!


My little man


He loves looking at himself.


Our Tiny has two teeth now!
No face pics allowed...yet!





My sweet sweet little Waylan
This baby LOVES his MeMe.


Kay-Bug, MeMe's sweetheart.




Looking through the toy paper :)
Yes, it's that time of the year!


Our precious little Aniston




We celebrated Thanksgiving early with 
Hubby's family.
This is my MIL Linda with my daughter Anna
and my grand angels Waylan & Aniston.


Brookelyn and Z with my niece Jessie,
who will soon bless us with a new nephew.
Aunt Sandy can't wait!




Blaze, Kaylan, and Curly Top.



Blaze and Justin (JK)
Yes, the little boy you've
 read so many posts about.
This is him!
My new grandson!
He is Blaze's best buddy!



My Brookelyn Shae


Kaylan & Adalyn (The shy one :)



Waylan & Uncle Jon.


Am I blessed or what?????



 Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

A Letter to a Child With Special Needs Child....


Dear Sweet Child,
Today a fighter was born. You. Yes, you. The sweetest, tiniest, most precious little soul. You are strong, brave and full of courage. I’d like to welcome you to the world and tell you a little about what to expect on your journey. It may be a confusing time for you. Machines monitoring your progress, your parents’ tears falling gently upon your delicate skin and doctors swirling around you. Never fear, you are loved. You will soon find clarity and your purpose. Life for you will be a little different than it is from most. You see, you were born special.
There will be days in your life when you will reach for the stars and other days when you will feel defeated no matter how hard you try. There will be triumphs and celebrations and at times unexpected set-backs. Your life will be a tender balance of difficulties and joy. But you will undoubtedly do amazing things. You have a gift to light up dark rooms, to speak without words, to inspire others and to demonstrate unconditional love. But the world won’t always make it easy for you to shine like the star you were born to be.
There will be times when you are met with cruelty. Stares, hurtful words, uneducated people and those who cannot yet see the beauty that is before them. It may make you feel lonely or worthless, but you must remember you are far from those things. Your heart will be wounded at times, but you need to know you are never alone. Because your heart is so big, you’ll be quick to forgive. You’ll teach more lessons in one minute than some can learn in a lifetime.
The world around you will occasionally be complicated and messy. You may hear predictions about your destiny and have expectations placed upon you. Remember you are defined by none of it. There are no limits to what you can achieve and accomplish. No one can determine what you will be capable of during your journey. You will be a surprise each day to those around you.
There may be scary and hard times too. You may experience a multitude of medical procedures, endure countless hours of therapy and even accumulate various types of assistive devices to help you along in your day. There will be a team of those loving you through those times, and they will bring you comfort to see you through all of it.
You are going to do so much with your time here. It is not about what you can do or can’t do that will define your life. Spreading love will be your specialty. You may encounter hate, spite and ignorance, but the love within you will be stronger than all of it.
We’re really glad you’re here. Your life brings so much value to the world. You might need a pep talk sometimes and that’s OK. We all need that from time to time. But no matter what, remember never give up hope that things will be better tomorrow.
For now, remember this: When you feel low on smiles and you feel it’s over before you’ve had a chance to begin, dig deep and remember your purpose. Laugh loud, live in the moment and dream big and most of all remember you matter in this world.
Love,
Stacy, Chris, Noah and Luke
This post originally appeared on Noah’s Miracle.

I read this letter on another blog and it brought tears to my eyes. I can so relate to the feelings this parent has. I've watched my little boy go through so much over these last 2.5 years. He has came a long ways, endured so many procedures, test after test, therapies, and hospitalizations. Some see him and don't realize what all he's been through. Others see him and wonder why he is the way he is. It's hard....sometimes very hard. Especially when I see him struggle and I know that I can only do so much to help him.
  However, I am so thankful that God chose me to be the mother of this amazing little boy. He is my superman. He has fought battles that most can't even begin to imagine and he has been through more than most adults go through in their whole lifetime. He's going to do amazing things... I knew it the first day that I met him. God has amazing plans for my Blaze. Just set back and watch my little superman fly.



 Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

Nov 22, 2014

In memory...


In memory of my two brothers
Robby & Bryan
and
In memory of my
angel grandmother
"Nanny".
Forever loved and never forgotten.

Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

Nov 19, 2014

Just a quick update...

Just stopping by with a quick update...
On Monday I went to court on JK. It was suppose to be a termination hearing that was to last from 1-3 days. His dad decided to show up for court and guess what?!?! He surrendered his rights!!!! Instead of dragging it out, he went ahead and signed the papers. Woo hoo!!! Mom had already surrendered back in the Spring! So JK is free for adoption now!!!!!!! I got the chance to talk with his dad and with his dad's dad (JK's granddad) As you can imagine it was a sad time for them. It wasn't an easy decision, but it's one that really is in the best interest of JK and they know that. I went ahead and informed them that my daughter will be adopting JK instead of us. I think that kinda made them sad, but after I told them about my daughter Anna and her family, they seemed to take it better. They asked about any future contact and I told them that I would have to discuss that with Anna & Corey. They said they are wiling to do occasional letters and picture swaps (like I do with Blaze and his family). We are so excited to have JK in our family. He is going to keep his first name "Justin"(which I LOVE) but he is going to get a new middle name and of course their last name. I think his middle name is going to be "kade" or "Cade" the last time I heard, but they may change their mind. He will have to live with Anna 6 months before it can be finalized...that is the rules here in our state.

Our foster girl "Tiny" turned 8 months on the 17th! She is saying ma ma, da da, and bye bye now. She has 2 teeth. She is still teeny tiny just like her birth mom. Yesterday she was 14.1 pounds and she is 24.5 inches long. She is the most smiley baby, always happy, and constantly babbles. She is eating all flavors of baby foods now. She LOVES to eat. She is also suppose to be going to termination in Dec. However, I've never worked a tpr in her county so I'm not sure if it will happen next month or not.

Well I had planned to write more but that's all I have time for. Have a great day!


 Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

Nov 15, 2014

Way to go Team Blaze!...


Team Blaze had a race today in North Carolina!
His runner Cindy managed to complete
the race in 20 degree temps.
Blaze is so blessed to have Cindy
and her family in his life.
Team Blaze Rocks!!!
~~~~~~~~~~~~~~~~~
11-19-14

Blaze got another package today full of 
goodies from his running buddy.
Tucked inside were 2 more medals
from their last two races.
Team Blaze is on a roll!



 Trust in the LORD with all thine heart;and lean not unto thine own understanding. In all thy ways acknowledge him,and he will direct thy paths. ~Proverbs 3:5-6

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